Baby Hayden

Hayden is in ICU

2009-07-30T16:58:00.002-05:00

Hello everyone,

Hayden went into the hospital Tuesday, and had emergency shunt surgery in the middle of the night Tuesday. His shunt dysfunctioned (not draining properly), so he has a new pump and a new cathater (he had to be opened up on his head AND tummy).

He is still in the PICU because his heartbeat is irregular and his stomach isn't draining the brain fluid properly. We don't know if he needs another surgery today or not...just waiting on answers. He is a fighter, like always.

Lisa and our Mom have been troopers, sleepinging (hardly) in chairs in the ICU--never leaving Hayden's side.

Please pray for our little man, he really needs them right now.

Hat's Off To Krystal!

2009-07-22T12:33:00.001-05:00

Hat's off to Krystal! She stayed focused and never had a nervous break down. You really are a amazing young lady. I personally want to thank all the family and friends who worked so hard before, during and after the event. I have never worked with a better group of people! Eveything ran so smooth. Thanks to the muscles too. William, Wayne, Jeremy, Eric, Cody, Dylan and so many more... Also to our auctioneer Cory who made the auction such a success and so much fun. I enjoyed meeting everyone and hope to stay in touch. You truly are Hayden's Angel's!!! What a great day.

Starla

We need to thank Krystal too!

2009-07-21T14:14:00.002-05:00

That girl worked so hard on this, you would've thought the money was for her, lol! But she did an awesome job at organizing our meetings and keeping in touch and keeping up with all the thousand little details. Guess it's that teacher thing!

She really loves her sister and baby Hayden and we all were witness to just how much. All three of them inspired me and kept me going on this benefit. They are wonderful people and I'm glad to call them my family!

Brenda

Thanks to Everyone!

2009-07-21T11:03:00.003-05:00

Thanks so much to everyone that donated their time, product, and money for Hayden's benefit! It was definitely a lot of fun, and a success! We raised money for Hayden's special needs trust that will definitely help purchase much needed medical equipment and so forth!

To the people and businesses that donated: Thank you so very much for your gracious donations! Without you all, we wouldn't have been able to raise the money for our sweet little Hayden!

To the people who came: Thank you so much for your support! We appreciate you coming out and spending your Sunday with us! We all hope you had fun and enjoyed the time spent at the Baby Hayden Benefit!

To our volunteers: You rock! We couldn't have done it without all of you! There are a couple of people I think that didn't take a break all day (because they wanted to keep working!!) Wow! We appreciate all of the hard work and dedication you all put into this--trust me, it did not go unnoticed! The cookers stayed out ALL NIGHT Saturday night AND cooked and served ALL DAY Sunday! What would we have done without all of you? Thanks so much for your generosity and compassion...and that great BBQ!!!

To Brenda and Starla: We would not have been able to have a benefit without the help from you two! You both played such important roles in this entire process, and I appreciate your mentoring and dedication so much! I don't know what I would have done without you!!

To Lisa and Hayden: You two are the best duo I have ever met! Te most dedicated Mother and most precious son! I can't think of a more deserving pair than the two of you! Hayden truly is a blessing, and Lisa a Godsend.

If I have missed anyone, thanks so much to you as well =)

Sunday is the BIG Day!

2009-07-18T19:27:00.004-05:00

Okay everyone, SUNDAY is the BIG day! 11:00 - 6:00!!!

Hope to see everyone there! It is going to be so much fun, I can't wait!

Thanks so so so much to everyone who has volunteered their time (blood, sweat, and tears...)to this benefit to make it GREAT for Hayden! We definitely couldn't have done it without you all!

Puppy start-up kit

2009-07-17T08:12:00.003-05:00

We got a Japanes Chin puppy (10 weeks old) for the auction! It is a male with: food, kennel, collar, bed and more! He is CKC registered and comes with full papers.

Autographed Boxing Glove - GEORGE FOREMAN!

2009-07-16T23:07:00.002-05:00

We got an autographed boxing glove from George Foreman. Also his book that's autographed and an autographed picture! The stuff we are getting for this benefit auction is just amazing!!! Don't forget it's this Sunday! July 19th from 11am - 6pm.

Jimmy Burke Activity Center
500 W. 13th Street in Deer Park, TX

Read the previous posts below to find out more about what activities will be there and also about Baby Hayden.

Come out! You don't want to miss this!

2009-07-13T21:10:00.002-05:00

Thanks to Matt and Kendra who donated to our kid stretch raffle...we have TONS of other great toys as well!

New Auction Item - Trip for 2!!!

2009-07-13T16:11:00.001-05:00

2009-07-12T12:52:00.007-05:00

Kristin and her mom dropped off some AWESOME and some BRAND new items to the house today!

5 Foot Wooden bench--great for in or outdoors

3 Piece set with: Table, Mirror, lamp and decor

Sunflower trifold with accessories (Including BRANDNEW matching baskets, and table runner)

Antique-never been used 7 Piece Genoa Porsecain/brass Cooking Set

Meeting!

2009-07-11T23:23:00.004-05:00

The meeting went very well tonight, we got lots of commitments and auction items. Thanks to everyone who came and donated more time and help along with items for the auction and other things. We really appreciate it!

Time is getting short so we need to get the word out. Please send an email to everyone on your email address book that says please forward to everyone in their's about the benefit. Left click on the flyer below, then Right click on the flyer and save it to your computer to include in your email to others. Example:

Hi everyone:

I have been involved in a benefit that is coming up for a special needs child. See flyer below. We're looking for help for the day of the benefit. It would be just a few hours of your time. We also need auction items if you can get them to us before Friday. Or even just coming out, eating BBQ and enjoying the day. We're also taking donations if you would like to support that way. See the donation button to the right or you can send a donation to Shell Credit Union in Deer Park. Make checks payable to Hayden Vorse Trust. If you just can't do any of the above things to show support, will you please just forward this email to everyone in your email address book? Getting the word out is just as important.

Thank you!

A few more interesting items. We have "A night to remember" date night package which includes Limo Service, a night stay at the Westin Oaks Hotel, and dinner at a fancy restaurant. This package has an $800 value, you won't want to miss out on this one. We also have 2 - $300 gift certificates from Gallery Furniture. Oh and for the kiddo's, we are raffling off a swimming pool filled with toys.

Stay tuned for more items listed!

Kids will have plenty to do!!!

2009-07-10T16:52:00.002-05:00

Come out and bring your kids! We will have face painting, games with prizes, bounce house, a magician, karate demos and snow cones. There will be so much to see and do you won't want to miss this. Most things will be inside in the air conditioning.

To help spread the word, please send this link to everyone in your email address book. If you're on Twitter, post about it there. If you have a Myspace or Facebook page, post the link there. Please help us get the word out!

Thanks,
The Benefit Team

Raffle!

2009-07-10T01:15:00.005-05:00

Did you know we are selling tickets to raffle off $3000 worth of furniture from Manvel Matress Furniture Gallery? You can buy your tickets now and you don't have to be present to win. 1 ticket for $5, 3 for $10 and (best deal) 10 for $20!

If you would like to purchase tickets, please call either number below:

281.787.7088
281.460.5295

(click on picture to enlarge)

Interesting Auction Items

2009-07-09T00:15:00.003-05:00

We've got some autographed pictures. One is Dale Earnhardt, another is Roy Oswalt, and another is Jeff Green. And last but certainly not least our own Baby Hayden!!

Stay tuned as we start listing more items!!

You don't want to miss this auction and all for a great cause! Baby Hayden!!

Baby Hayden Benefit

2009-07-08T15:01:00.008-05:00

(FLYER - Click to enlarge)

Hello our devoted Hayden followers!

The Benefit for Hayden is quickly approaching (JULY 19) and we are all so excited and anxious--can't wait to raise that money for his future!

Remember to keep spreading the word (and flyers)...ESPECIALLY in this next week! The more people that come, the more money we can put into Hayden's special needs trust!

REMEMBER: EVERY person counts and every person is equally appreciated!

Hope to see you at the benefit!

He sure has come a LONG way, hasn't he?

HCN Online - Hayden's Feature

2009-07-05T10:37:00.007-05:00

(Click the title above to be directed to his feature)

Hayden's feature was on the front page of the Deer Pak and Pasadena newspapers today. He is too cute, and we are all so proud of he and Lisa! Let's hope our gracious community reads his article and plans to come to his benefit!

Baby Hayden

2009-07-03T19:37:00.004-05:00

Hello everyone!

Thank you so much for your kindness and support! Hayden is doing great, and he is even going to be on the front page of the Deer Park and Pasadena Newspapers on Sunday, July 5th! He’s our little fighter and celebrity!

Please keep telling friends and family and reminding them about the benefit so we can raise money for his future!

Thanks again for all of your hard work! Our next meeting will be at my house on Juy 11th at 600! Hope to see you there!

If you are new to the blog, welcome and thank you so much for showing interest in Baby Hayden. He is the sweetest baby and has the most wonderful Mommy in the world. I will include a flyer for Hayden’s Benefit, which will be on July 19th at the Jimmy Burke Activity Center in Deer Park.

We would LOVE to see you there, so please tell your friends and family and bring your appetites! We are going to have great food and fun!

P.s. Haydn has his 1st tooth coming in!!! He is really getting to be a big boy!

Benefit Flyer - Click to enlarge

Dart Tournament

2009-06-29T14:56:00.006-05:00

The dart tournament Saturday went great! We had 26 people play in the tournament, and MANY others come for support! It was alot of fun!

A BIG THANKS to: BJ, Kristen, & Ryan Toon for helping to organize and run the games!!

Thanks to: Ryan and Nikki Toon, who won the total money and DONATED IT BACK TO HAYDEN!

We raised:$530 in the tournament and $430 in donations, for a total of $960!!!!!!!

Thanks again for everyone who came and participated in raising money for Hayden! I'd have to say the tournament was a big success!!

The Final 4: Lisa, BJ, Nikki and Toon

Nikki and Ryan Toon winning the money and donating it to Hayden!

Lisa with the winers!

There were more people, but they accidently got cut off...oops!!!

Hayden's Scan Results

2009-06-18T00:09:00.005-05:00

Hello everyone!

Hayden's appointment went well Tuesday. They took another scan of his brain and are still flabbergasted at Hayden's progress. They have absolutely NO medical explanation on how he is even alive. When Lisa asked how many cysts were still in his brain, the doctor commented that there were "over 100". Lisa compared the picture of his brain to a honey comb, with so many holes and black spots =(

Against all odds, some parts of Hayden's brain HAS grown back, but doctors are not sure it if is viable or not...only time will tell. All we know is that he is a resilient little fighter and an inspiration to us all!

That is why we so desperately need to be out there fighting for him and this benefit! I know we won't let him down!

Love you all!!!

P.S. The dart tournament is set!
*June 27 – 4:00 pm
*Corner Pocket Sports Bar - 5626 Red Bluff in Pasadena
*$20 Buy in
*Blind Draw
*1/2 of winnings and 1/2 drink sales donated to Hayden
*Open to the public

Here is the flyer Brenda created for us! Tell everyone you know to come--it will be a fun way to help raise money for Hayden's future!!!

Cick to enlagre

Dr visit and Benefit news

2009-06-16T13:42:00.005-05:00

Happy Tuesday to everyone! Hope everyone is over the Monday blues!

Lisa and Sara took Hayden to Texas Childrens for a check-up on his new shunts...let's wish him luck!! We love you Hayden!

Just a reminder, that Saturday (June 20) at 5:30 at Krystal's house is out 4th and a VERY important meeting...I hope you can all make it! I promise it won't take up too much of your time =) My address is: 10111 Belfast in LaPorte 77571

BJ is confirming the final details with the dart tournament for JUNE 27...I will post when I receive all of the info

Just gona post a flyer again:

Hanging out!

2009-06-12T12:08:00.003-05:00

Hello everyone!

I'm at Aunt Krystal's house today, missing my Mommy while she's at work and my Grandma while she's in Virginia!

Thanks to everyone that has been helping with my benefit, you have no idea how much my family appreciates it! Let's help raise some money to secure my future and get me the things I will need later in life!!

Love you all!!!

Thanks again so very much, Every PERSON, every DONATION, every DOLLAR counts!

*If you have never met a child with special needs, your heart had never really been opened--Starla

New Paypal Button

2009-06-11T16:27:00.004-05:00

We have our new Paypal button for those who wish to donate money. Paypal is the easiest and most secure way to pay with your credit or debit card on the internet. You don't have to sign up with Paypal to be able to use their site to donate. The amount has been left open so you are free to donate any amount you wish. All donations are kept private and we want you to know that we appreciate any amount given.

Thank You!

For our NEW Members

2009-06-10T23:21:00.003-05:00

Hello everyone! First off, I want to thank you for helping us secure Hayden's future!!! Your generousity and support means so much to our Hayden and our family!

Because it will take lots of work and will need all the help possible, Brenda made a forum to help keep track of Hayden's benefit. This is a GREAT and organized place (internet site) where we can keep track of everything, for example: food, venue, donations, etc. We can throw ideas around and keep them all organized! Here is the address:

http://s1.zetaboards.com/Hayden/index/

I know it's long but it's free. The only rule is to join using your REAL first name and last name. Since we all will know each other, it will be easier that way. So go look it over, tell us what you think!!! PLEASE feel free to go to the forum and post ideas, news, etc--that is why it is there!! EVERYONE is welcome!!

Once you register and log-in, you can bookmark the page and it should keep you logged in on your computer. (On AOL, click the little heart and click "add to TOOLBAR" then enter Hayden under the symbol and it will be in your toolbar across the top: Accessible with one-click)

The more people to become involved, the better! You never know who knows who till the word starts spreading!!!

Lots of News

2009-06-10T23:18:00.002-05:00

Hello everyone!

Thanks to everyone who made the last meeting, we really appreciate your support!

Our next meeting will be on Saturday June 20 at 5:30 pm. I know how busy everyone is, but we REALLY need everyone to attend! The benefit is on July 19th and we still have A LOT of things to do!

I have been going to businesses and am finding that many people are not able to donate…I’m getting about 1 YES in every 10 NOs, so if everyone was out asking, we could really be getting more things for the auction! Like Starla said, treat your folder with your flyes in it like your “baby”—take it everywhere you go. If you run to get fast food, ask for a donation! If you go shopping for clothes, ask! It only takes a couple of minutes, but could really change Hayden’s life forever. Just ask for the manager, give him/her a flyer and ask if the company would be willing to donate for a good cause!

BIG NEWS!!! We finally got the TRUST account open, yay!! Lisa and I went to the lawyers and Shell Federal Credit Union and got it done!! The official name for the trust is: Hayden Vorse Trust (if anyone wants to write a check).

Brenda put a DONATE button on the blog so people can donate directly from the blog page!!!

A BIG thanks to Christina and Jackie and the volunteer group at Shell Federal Credit Union!!! They called Lisa and I today ad WANT TO HELP with the benefit!! Talk about great people! There are 20-25 people in the volunteer group and many of team want to help at the benefit! They have been passing out flyers in the community and generating interest and spreading the word! Wow, Hayden sure has some angels out there!

The dart tournament is set for June 27 (a couple Saturdays away)..we are still working out the details and will get back to you!!!

Thanks again to everyone that is helping to secure Hayden’s future…we couldn’t do it without you, every person counts!

Keep spreading the word and selling those raffle tickets

I LOVE Carrots!

2009-06-10T21:51:00.004-05:00

I'm ticklish!

2009-06-05T10:48:00.003-05:00

Hi everyone! I'm doing great and want to thank you all so much for helping with me benefit!!!

Hayden's EEG

2009-05-27T14:49:00.002-05:00

Hayden is getting an EEG to make sure the new shunt-like tubes are working.

He is doing well after surgery. Lisa did have to take him to the ER Friday because his head was swelling (where they had to drill holes in his skull for the tubes)...but they said swelling may not go down for a few months.

So...keep praying for our little man!

also, I was thinking about having the 3rd benefit meeting on the weekend of June 6th sometime...maybe Friday because Haylee's B-day party is Saturday.

I'll keep the forum updated, Thanks!!!

Surgery

2009-05-15T09:36:00.002-05:00

He is swollen from surgery...but a trooper like always

Surgery went well...doctors places 4 shunt-like tubes in Hayden's head to try to redirect the flow of fluid from his brain. Obviously, the last shunt revisions were not working so they are trying something new. The bandages have not been removed yet, but Lisa seems to think that the tubes are larger than the shunt catheter…poor baby, can’t ever catch a break.

They may let them come home today, depending on how well he is eating and how well the new system is working…and if there is no infection, God forbid.

Thank you so much for your prayers and thoughts…maybe one day we can just pray for him to have a good day- instead of praying that he recovers from surgery month after month. One day.

Love to everyone, and thanks again!

He is in Surgery

2009-05-13T14:56:00.002-05:00

Hayden is in surgery right now...he was wheeled in about 2:30. Not only was his shunt "over-shunting", the past week or so...it became blocked last night and his head swelled. Lisa sure knows her son; she knew right away that there was an additional problem to the "overshunting".

They are trying something else other than the last shunt revision techniques...apparently it didn't work the last few times...They are putting 3 tubes in instead. Since his initial shunt surgery, Hayden has needed a shunt revision very 3 months- like clockwork …

Please pray for Hayden, Lisa, and our family…everyone sure needs it right now.

Thank you so much everyone.

Love,

Krys

Hayden Needs Surgery

2009-05-12T15:03:00.004-05:00

Hello everyone.

Lisa has taken Hayden to TX Children's twice in the last 2 days, and just got a call that said he needs another (the 5th) shunt surgery.

Poor Lisa is beside herself as you can imagine. Please pray for a successful surgery and a quick recovery. Please pray for them both, as this may be one of those 9 day stays again...but we definitely hope not...we were really hoping that he was done with all of these surgeries.

I will keep you updated with the info as I get it.

Thanks

Benefit Flyer- Click to enlarge

2009-05-11T11:43:00.001-05:00

Hayden

2009-05-11T09:08:00.002-05:00

Hello Hayden fans =)

As most everyone knows, Hayden's surgery went well! Even better than expected, for once!! Lisa and our Mom were there for him throughout his surgery and recovery over the weekend. Way to go Hayden!

Lisa is, however, taking Hayden in this morning because he has been acting a little strange lately, (fever, irritable, refusing to eat)...all the signs that his brain cysts are growing or a shunt malfunction. BUT, let’s hope not! Maybe he is just constipated or something???

Preparations for the benefit are going well, thanks to everyone involved! For those selling raffle tickets, let’s try to get those things sold are turned in so we know if we need to print more or not!! =)

Thanks again, and please take a moment to say a little prayer for Hayden and Lisa…we all HOPE it is not one of those 9 day stays at TX Children’s again!!!

P.s…Lisa finally got to have Hayden home for Mother’s Day!! And we all know, Lisa is the world’s best Mommy!

Hayden is having surgery

2009-04-14T17:49:00.003-05:00

Hello everyone!!!

1st things 1st…Hayden is having surgery this Friday! He is being circumcised, and even though this surgery is usually no big deal—we all know Hayden’s past and his vulnerability to infection! Lisa and Hayden will stay at TX Children’s (their home away from home) for AT LEAST 3 days. If you have some time this weekend, maybe you could try to visit them for a little while? I don’t know HOW she sits up there all day for 3 days (with little sleep) all by herself…it gets really lonely on Sunday afternoon when you’ve been there all weekend alone.

Please continue to pray for little (or should I say, “BIG boy”) Hayden, and add in a few extra words about his surgery. We all know how his immune system is down, and even the slightest little cold could postpone his circumcision…this surgery is the rescheduled one. His first surgery was postponed due to a cold.

Okay, onto meeting news…the 1st meeting went GREAT…thanks so much to everyone that came to support Lisa, Hayden, and this great cause! For those who could not make it, we look forward to seeing you at the next one (May 2)!!!

Please go check out the BENEFIT forum to get updates about the planning process!!! It you type in: http://s1.zetaboards.com/Hayden/topic/1503282/1/
it should go straight there (IF you stay logged in).

Thanks so much, and keep on the lookout for updates!!!

Also, Hayden has 2 Dr. appts Wednesday…one for his eyes (A 3-5 hour process) and he is getting fitted for his helmet!!! He also has an appt on Thurs and surgery Friday…what a busy schedule!!! He sure is our little fighter!

1st Benefit Meeting

2009-04-06T22:55:00.002-05:00

Hello everyone...now that the date (July 18th) and venue (Jimmy Burke Activity Center in Deer Park…500 West 13th Street) has been set up...it is time to have our 1st official meeting!

It is going to be at my house (10111 Belfast in LaPorte) THIS Saturday (April 11) at 4:00. It will be a very important meeting, and anyone who wants to be involved with the benefit is encouraged to come...especially those wanting to accept a "chairman" position =)

We need a chairperson for Activities, one for auctions and one for food. These CP's need to know what they are getting into and be ready to take on the responsibility of it. That means overseeing the volunteers and making sure they do their jobs. Organizing things before at the event. Posting things on the forum such as progress and questions. Clearing things with head chairperson, etc.

It sounds like a lot, but the more helpers we have, the less stress on everyone =) PLUS…we get to hang out together and play with Hayden!!!

There will be committee sign-up sheets (ie Food) and subcommittee sign-ups (ie Bake Sale).

It will be a very organized meeting and we hope to accomplish a lot! Also, there will be chips-n-dip and cookies, MMMMMMMMM =)

Thanks so much everyone...time to get thing rollin!!! The more help the better, and it will greatly appreciated...even the "smallest" support will help...little things add up!

Let’s remember why we are having a benefit in the first place, Mr. Hayden!!!

Please go to the forum and reply to the TOPIC so I can see who is hoping to come...anyone and everyone welcome! (http://s1.zetaboards.com/Hayden/topic/1466192/1/#new) If you are logged into the forum, this address will go straight there!

2009-04-04T10:39:00.002-05:00

Hello everyone...I'm so glad to see friends and family joining Hayden's benefit forum!!! Thank you so much, all of your input has been very helpful and valued while planning!

For those who have not signed up, please do! It will not be the same without you! It is quick, easy, and free! Just go to:

http://s1.zetaboards.com/Hayden/index/

and click on [REGISTER]...put your REAL name, and you're done! Can't wait to see you there!!

P.s. Please don't forget to check the forum frequently...there are always new posts being posted!

Hayden's Benefit

2009-03-25T18:36:00.001-05:00

Hello everyone! First off, I want to thank everyone SO MUCH for coming to Hayden’s 1st birthday party…I think we can all agree it was the largest (as in people) b-day party ever =) Thank y’all so much, Hayden truly is loved and you guys are so appreciated!

I know that some people have been throwing the idea around of throwing Hayden a benefit. Brenda and I have been discussing it, and think it would be great to do this summer (June or July?) Because it is such a large task guess we should start somewhere. I am in the works to get the DPFD Rec hall (where Lisa and D got married).

Because it will take lots of work and will need all the help possible, Brenda made a forum to help keep track of Hayden's benefit. This is a GREAT and organized place (internet site) where we can keep track of everything, for example: food, venue, donations, etc. We can throw ideas around and keep them all organized! Here is the address:

http://s1.zetaboards.com/Hayden/index/

I know it's long but it's free. Brenda is going to have some business cards made up for it. The only rule is to join using your REAL first name and last name. Since we all will know each other, it will be easier that way. So go look it over, tell us what you think!!!

Once you register and log-in, you can bookmark the page and it should keep you logged in on your computer. (On AOL, click the little heart and click "add to TOOLBAR" then enter Hayden under the symbol and it will be in your toolbar across the top: Accessible with one-click)

The more people to become involved, the better! You never know who knows who till the word starts spreading!!!

I am going to research the “correct way” to ask for donations (from Wal-Mart, private businesses, etc) and will post it in the forum…we definitely do not want businesses “hit up” more than once! It could be GREAT publicity for companies, and hey-we are all doing this for a GREAT cause: Mr. Hayden’s future!

Hope to see everyone register with the forum and begin posting ideas…maybe we can have a meeting sometime in the near future:

1. To see who is all “on board” =)

2. To all be on the same starting point/page

Thank y’all so much! Can’t wait to get this thing started…wouldn’t it be so nice if we could help secure Hayden’s financial future to ensure he will have all of the things he is going to need? This would be one less stress on Lisa’s plate, and we ALL know she could use less stress =) She's is truly an inspiration to us all, and so is her BEAUTIFUL miracle "BIG boy"!!

And hey…who is gonna pass up a fun day with great food?

Love you guys...hope to see you on the forum!!!

Krystal

Hayden is Home

2009-03-19T20:17:00.003-05:00

Wednesday, we took Mr. Hayden to TX Children ER because he showed all the signs of a shunt malfunction (the same signs that caused him to need all 3 shunt revision surgeries before)...sleepiness, vomiting, fever, refusing to eat, etc. Poor Lisa was so nervous that he needed to have yet another surgery to fix his shunt and that he would miss his 1st B-Day party =(

After all of the tests, scans, and X-rays...and waiting for the results all day...docs finally told us that he was just severely dehydrated (from the vomiting/refusal to eat)...NOT that this was great news, but it was better news than surgery! Lisa and Hayden stayed overnight so that he could be observed and get the fluids he needed, and came home this afternoon!

He is looking cute as ever (duh) and ready for his BIRTHDAY PARTY Saturday!! Hope to see everyone there!

Love yall!!

Hayden's B-Day!

2009-03-15T01:30:00.005-05:00

Hey everyone!

Hayden's 1st Birthday and party are coming up on March 21st! Can you believe he will be a year old already??? The party will be at my house at 2:00!

We are so thankful and blessed to have Hayden on this earth, after everything he has been through. He is definitely our litle fighter man!

If anyone is wondering, Hayden needs toys that light up and sing, diapers size 3-5, sleepers 9-12 mo., soft or classical CDs, and wears 6-9 mo. pants. I think he needs some socks, too =)

Thanks everyone, hope to see ya here Saturday!

Update on Hayden's Surgery

2009-02-08T18:48:00.002-06:00

Hello everyone!

Mr. Hayden's surgery went well Friday. Thankfully, he did not need an additional shunt! The catheter on his current shunt was not draining properly, so doctors removed it and replaced it with a new one.

Because of seizure activity, doctors needed to observe Hayden for a few days in the pediatric ICU (PICU) at TX Childrens. He has been doing alot better and finally was allowed to eat!!!! HOPEFULLY, Mommy and Hayden will get to come home tomorrow (Monday)!!

Thanks to the loved ones who have been there with Lisa and Hayden at the hospital, and the many well-wishers from home! A special thank-you to Aunt Lara, who rarely left their side for 2 days!!! It is amazing how strong a family becomes in times of worry and desperation. We have THE BEST family, ever!!

I WANT TO GIVE A BIG THANK-YOU TO EVERYONE THAT HELPED MOVE LISA AND HAYDEN!!! Lisa was approved for a 2-bedroom apartment recently. She was SO excited that Hayden will have his OWN room, and she was going to get to begin moving in this weekend. When Hayden needed surgery, Lisa, of course, put moving on the back burner.

Our cousin, Latisha (Tisha, Ditta, whichever name you call her =) began the process Saturday by spending ALL DAY AND NIGHT packing, wrapping, and cleaning (dishes, clothes, etc). She also went shopping for Lisa and Hayden groceries and other miscellaneous items that would make Lisa and Hayden feel right at home (when they get home).

The other big helpers, who moved everything from one apartment to another, were Sara, Tisha, Marshal, Brenda, Bryan, Jessica C., Frank, and Jeremy! Don't know WHAT we would have done without y'all! What wonderful and selfless people you all are!!! Thank you so so so much!!!

It was a long a tiring day, but the look on Lisa's face when she sees her new home is sooo worth it! She doesn't know exactly what we did...she just thinks we moved a couple of things! How exciting it will be to see her face when she is surprised!

Out of all the people in the world, no one deserves this more than Lisa and Hayden! (We just hope they don't move again for a long, long time =) ha ha ha

Thanks to everyone!!! Love you all!! Please pray for Lisa and Hayden's safe trip home tomorrow, Hayden''s first night to sleep in his own home since Wednesday and Lisa's 1st night to sleep in a bed since Wednesday (in their new apartment, I might add!!)

Hayden is having surgery

2009-02-05T23:28:00.002-06:00

Hi everyone! It has been a long time since we have blogged, but that is because everything has been going so great.

Hayden developed a soft lump on the back of his head. Lisa and our wonderful Aunt Lara took Hayden to Tx Childrens to have him examined. (Grandma would have gone, but she broke her toe and is in a boot).

Unfortunately, Lisa was told that he needed a cat scan to determine what the problem was. Tomorrow, he will having an endoscopy (camera going inside his head) to get a closer look.

Doctors think that his cyst (the large one inside of his brain) has swelled and is causing the lump. They said that Hayden may need an additional shunt to drain the fluid.

We are not sure of much; all we know is that Hayden will be having surgery on his brain tomorrow.

Lisa and Hayden are staying at TX Childrens until this is all over and he is all better! They said they will be there at least a few days (I'm assuming if he doesn't need the shunt)

We all know the pain, stess, and emotional roller coaster Lisa has been through this past year...not to mention what poor little Hayden is going through. We want to thank everyone that has supported them and loved them any way possible. You have NO IDEA how much that means to Lisa and the family.

Lisa and Hayden got approved for their new apartment and are supposed to move in next weekend (Feb. 13). We are not sure if they will be home or not, but I would LOVE to move their things in for them!!! Moving is another added stress I don't want Lisa to have to deal with right now. PLUS, how awesome would it be to be able to bring Hayden home from the hospital to his new home already ready??? =)

I would appreciate SO VERY MUCH if anyone would be willing to help! She is only moving a few apartments down (in the same complex) to a 2 bedroom. PLEASE call or e-mail me if you are free and wanting to help...ANY help is appreciated!!!

Thanks so much for all of your support and love!!! I will keep everyone updated with Hayden's progress.

Please continue to pray for his successful surgery and speedy recovery!!!

Wednesday, Nov. 5

2008-11-05T21:45:00.003-06:00

We had a scare yesterday after surgery. After abnormal behavior from Hayden and a scan of his brain, doctors realized that they had MISSED (not punctured) his largest brain cyst. They told Lisa he would probably have to have surgery AGAIN, and observed him all night in the ICU.

THANK GOD, Hayden stablized and does not need the second surgery right away. He is still in the hospital with Mommy and Grandma, trying to recover gain back his weight! Afterall, he did just have brain surgery!

He is as cute as ever and has developed some wonderful new traits!! Like making new noises, faces and completely blinking (things he hasn't done before!!!). He is the cutest thing ever, I know we all love him very much!!

Because Hayden has trouble eating and keeping food down, he is extremely under weight. They may have to give him a feeding tube for a litle while, just so he can get to a healthier weight.

Please continue praying for Hayden and his family as these are very stressful times for them!!

Thanks and love to everyone =)

Hayden's Surgery

2008-11-05T21:42:00.003-06:00

*From Tuesday*
Good morning,
Just to let everyone know, Hayden is in surgery at Tx Children's. He is not keeping food down and is severely dehydrated. My Mom and Lisa waited in the ER for 4 hours Monday, and when doctors were finally able to see him, they took him "STAT". He was sent to the ICU for tests and observation. Apparently, they don't know why he is so sick. They are going into his ventricles in his brain with a scope to see if there are problems there. Also, they will be checking for a shunt malfunction. HOPEFULLY they will find the problem, fix it, and little Hayden will be just fine. Hayden's usual surgeon is out of town, and his new one has informed Lisa that this surgery has never been done before.

Of course, Lisa and my Mom and worried and stressed to the max (after a restless night of sleeping on the floor in the hospital). Both of their cell phones are dead, so we can't call. They will be calling me when the surgery is over, and I will send out an e-mail. Please pray for Hayden's successful surgery and a painless recovery. This is the 3rd time he has stayed at TX Children's in less than a month.

***********************************************************************************

Hayden is finally out of surgery. They "busted" his cysts with a scope and replaced part of his shunt. He is in the ICU and is recovering. Lisa and my Mom are still at Tx Children's, too. Doctors believe that if Hayden does better Wednesday, he can start eating again!! YAY, I know how hungry he must be =( Hayden is such a strong little man, I admire his strength and will to survive. He may only be 7 months old, but he has been through a lifetime of experiences. Thank you for all of your prayers and thoughts. Please continue to pray.

Hayden is home!

2008-10-26T19:02:00.002-05:00

Hayden, Mom, and Grandma came home Saturday from Texas Children's after a 9 day stay resulting from shunt surgery. Hayden is feeling much better to be at home!! He has another brain scan on Friday, Oct. 31st (Mommy's 25th B-Day) to make sure the new shunt is draining the fluid from his right AND left side. If the fluid is not draining properly from his left side, Docs will do immediate surgery (to go in with a camera and bust all of Hayden's cysts).

PLEASE PLEASE PLEASE pray that the shunt is working properly and that he will not have to undergo MORE surgeries, especially on his Mommy's birthday =( Hayden has been through SO MANY surgeries, he deserves to be at home! As you may guess, another surgery will result in an extended stay at the hospital again.

If you have a minute, call or text Lisa with a few words of encouragement as this is an extremely stressful and tiring time for her. She is having to feed little Hayden every hour and a half from 7:00 a.m. to 2:00 a.m. (and at 4:30 a.m.) because he lost so much weight in the hospital. She is ALSO starting her new part-time job tomorrow (Thanks SO much to Uncle Glen and Rachel)...so Lisa will need lots of support and love!!

I would REALLY love to get together with you guys and do something special for Lisa and Hayden to just honor them for being the strongest and toughest Mother and son duo of all times...does anyone have any ideas? Please E-mail me if you have any ideas!! KDLogan1@yahoo.com

Thanks so much and love to everyone!

Hayden's shunt surgery

2008-10-19T20:46:00.008-05:00

SUCH a trooper!

SOOOO tired!

Don't come near me with that needle!

Me, Mommy and Uncle J!

Hello everyone. Mr. Hayden has had an extremely busy weekend! Lisa and Grandma took Hayden to his usual Dr. appt at Texas Children's on Friday. He was immediately taken into surgery because his shunt was blocked in two separate spots and was not draining the fluids from his brain.

Surgery went well, and his old shunt was removed and replaced with a skinnier and longer one. He was recovering well and hoped to come home Sunday afternoon.

Unfortunately, Hayden became sick. After a couple days of not keeping food down and other ailing symptoms, Hayden's IVs were replaced (8 times) and is currently under the doctor's watchful eye. There is a possibility Hayden will need another surgery and more procedures soon, but nothing will be known for the next couple of days.

Doctors told Lisa and my Mom (who is staying with Lisa at Texas Children's) to prepare to be there until at least Friday. They have their own room with Hayden in there as well. Lisa and Grandma are taking care of him while the Doctors only treat him medically.

Please pray for our little man and his family, as it is an extremely stressful and scary time right now. I think everyone can vouch and agree that Lisa definitely deserves a medal for Mother of the CENTURY!! What a loving, strong, and beautiful person/Mother she is.

On a GREAT GREAT GREAT note..........Scans of Hayden's brain confirms what doctors said was impossible: Hayden's brain is GROWING!!! Shows what the determination of a loving mother can do!! We all knew Hayden was going to prove those know-it-all doctors wrong!

We all love you big boy and are praying for your recovery!!

P.s. Please, if you can, visit Hayden, Lisa, and our Mother as they sit all day in their tiny hospital room with visits from Daddy, Grandpa, Aunt Sara, Aunt Krystal, Uncle Jerm and cousin Kaylee. I know they would LOVE LOVE to see family and friends' smiling faces!!! The number to their room is (832) 826-1008...it goes directly to them.

Also, please pray for our Mema as she is too recovering from surgery!

Happy 6mo B-Day Hayden!

2008-09-23T13:49:00.002-05:00

Sept. 21 was Hayden's 6 mo. birthday! He is such a big boy and is doing so well! Mommy and Grandma are at Babies-R-Us right now buying him a B-Day present =) They are also getting scales to keep up with his weight gain! Hayden is such a sweetheart and is growing so much every day!

I am sorry I have not been updating hayden's blog, but I do not yet have power =( To everyone else that does not have power, hang in there...hopefully we will all have it soon!

Hayden's 1st neurology appt

2008-09-09T19:42:00.002-05:00

Dustin & I took our little Man Hayden to his first neurology appt @ TXC today. Dr. Brown said Hayden is in great shape & is growing & finally gaining weight!! Hayden is 22" long & is weighing a hefty 9lbs & 8.5 oz!!! Dr. Brown is also confident that we can start weaning him off of his phenabar (seizure medicine)!!!! We want to Thank everyone so much for all the love, support, & prayers ya'll haven given our family thru our hard time. I also want to thank Krystal for doing such a great job by keeping everyone updated all the time thru the blogs.. Because Krystal also has a baby at home & a full time job, I will try to get on more often to give her a break!! We will have new pic's up soon =)
Love,
The Vorse Family

Pics of the "twins' babies"

2008-09-07T16:10:00.005-05:00

Hayden and Kaylee's first meeting, 8-29-08

Holding Hands!

Hayden, Kaylee, and Brody

Hayden is good and safe!

2008-09-04T20:27:00.003-05:00

After an 8 hour stay at TX CH ER, Hayden has been given the thumbs up! Although he is still thin, Lisa, Dustin, and the team of doctors are working hard to get his weight up!

THANKS to my Mom, Noni, Sara, and Courtney!!!!!!!!!!!!!!!!!! They went to Lisa's apartment today and took care of Hayden while Lisa slept for 5 hours! She needed some help so bad, and was running off of 1 hour sleep from the previous night! They really saved the day! Poor Dustin works all the time & it is hard & tiering for him to wake up evevry 3 hours to feed Hayden.

Hayden is such a cutie, and will going to his neo-surgeon tomorrow for a complete check-up. I just know that everything will be fine! Thanks for the prayers and thoughts...the journey has just begun!

I PROMISE I will upload some pics soon!

Hayden is in the Hospital again...Please pray for him!

2008-09-03T18:50:00.005-05:00

Hey everyone. Long time since I have posted, and I hate posting sad news.

Hayden has been having trouble keeping his formula down lately. Poor Lisa is up all night and day trying to feed him just 3oz at a time. It takes her an hour or longer to feed him 3 ounces EVERY 3 HOURS no matter what, and he is throwing up all of the formula after most bottles, so she has to feel him right afterwards to ensure nutrition absorbing. Because he has lost weight, the Pedi ordered Lisa to take him to TX Children's RIGHT AWAY. They have been there for hours and has still not been seen. We HOPE HOPE Hayden will not have to stay in the hospital...he is soooo tired of the NICU!! Please take a moment to pray for our little man that he begins to eat and gain weight! I will update the blog ASAP. Lisa's phone is dead, and she doesn't get reception in the hospital.

As you can imagine, Lisa, Dustin, and Hayden are extremely tired! As soon as Hayden goes to sleep, Lisa gets busy with the house chores while Dustin is working his butt off with 60+ hours a week.. They NEVER gets a minute to just RELAX!! If you get a minute, please shoot them a positive text or leave a message for them reminding them that they are WONDERFUL parents!!! Dustin & Lisa are so tired (physically, emotionally, etc.) and deserves encouragement!!!

I will keep everyone updated!!

Too cute!

2008-08-14T18:03:00.002-05:00

Hayden is doing great, just loving being at home with Mommy and Daddy!! Home sure does beat that lonely NICU!! There just isn't enough time in one day for all of the kisses he is getting!!

The Booger is home!!!!

2008-08-10T19:00:00.005-05:00

The Booger is home!!!! Mr. Hayden Wayne Vorse is finally home as of Friday afternoon! Lisa and Dustin are on cloud nine and loving every minute with their beautiful miracle baby!

Thanks so much to everyone that has been keeping track of the Vorse fam and their difficult journey through the NICU. Their new chapter in their life has just begun and we will be sure to keep the blog updated!

Hayden is going to his Pedi tomorrow and they will find out when it is safe for people to start visiting.

We love you Lisa, Dustin, and Hayden and good luck with your first week home!!

Friday is the Day

2008-08-07T00:49:00.004-05:00

FRIDAY is the day Hayden will be coming home (HOPEFULLY!!!!) As soon as Dustin gets off of work, they will head on up to the hospital to pick up their bundle of joy!!!

We are hoping he will not need tons of monitors and medical attachments to come home with, but if he does, that'll be okay, too!

It is so hard to believe, that just 4 months ago, we were so worried about Hayden's survival...and now, we are anticipating his arrival home. Prayer does work, and we appreciate everyone who has stuck by our side throughout these long and sometimes troublesome times; without all of you, these past 4 months would have seemed so much longer.

Friday will mark the end of one chapter in the Vorse's lives, and begin a new one. Although Hayden is coming home, the long journey has just begun. Lisa and Dustin have a long road ahead of them with all of Hayden's special needs. He will have physical therapy sessions, frequent dr. appts. with all 5 specialty doctors, and so many other commitments. With the love and commitment from this outstanding family, I know they will persevere.

A Quick Update!

2008-08-03T21:49:00.003-05:00

Just a quick update! Hayden has passed his car seat test (sitting safely in a car seat for 1 hour while maintaining good stats), which is 1 step closer to his arrival home! It may be a little postponed due to his slight weight loss, but that's ok-as long as he come home soon!!!

He is almost home, Lisa!! No more driving downtown every day to spend time with him...he will soon be a footstep away!!

Hayden is coming home soon

2008-07-31T16:46:00.002-05:00

Hayden is coming home soon!! Yes, the news is so true…the day we have ALL been waiting for!!!!

Doctors told Lisa this morning, that if all goes well the next few days, Hayden should be coming home Monday or Tuesday!! Yes, THIS Mon or Tues, as in August 4th or 5th!!!! There is still a chance something could happen, and Hayden will need to stay, but let’s hope not.

We need those prayers going through the roof right now, so please pray pray pray for a full recovery so Hayden can FINALLY come home to his Mommy and Daddy!!!!!! Wow, it is finally happening for these amazing parents who NEVER gave up hope!!

A HUGE thanks to our Mom, Dawn, who visited Hayden every day with Lisa. She almost spent as much time at the hospital as Lisa has! She remained the rock of this family through these tough few months, especially for Lisa. So, THANKS SO MUCH MOM!!! Lisa has said that she wouldn’t know what she would have done without you!

I know that everyone is soooo excited about finally visiting Hayden at home, but it is going to be a difficult process. Doctors have informed Lisa that there can only be a couple people (maybe immediate family) that will be able to visit the home right away…we have to remember that his immune system is still weak and he is sooo susceptible to ANYTHING, including colds, coughs, pneumonia, and especially infection!! At the hospital, the room air is much more sterile than at home.

Lisa and Dustin ask to have total privacy the day Hayden comes home…as you can imagine, they want every single second with their precious baby without any distractions!!! Everyone has been so great and I know you will respect Lisa and Dustin’s wishes! Thank you so much!

When people are finally allowed to visit Hayden man, there can DEFINITELY be no babies or kids, as they have lots of germs…sorry Kaylee, I know you wanted to finally meet your cousin =(

If and when people are able to visit Hayden, your clothes must be clean and contain NO NO NO pet dander or cigarette smoke. Hayden is still susceptible to respiratory disease and various respiratory problems! Lisa and Dustin have given Gizmo to my Mom and Dad b/c they can have no pets with Hayden.

I will update the blog with more information (the exact date he’s coming home and when people can visit) when I get updated by Lisa.

Thanks so much you guys for your support and prayers!!!

P.s. HAYDEN IS FINALLY COMING HOME, YAY YAY YAY!!!

Surgery went well

2008-07-29T20:59:00.003-05:00

Hayden's surgery went great today, thanks to God and everyone that has been praying for him. Also, thanks to the many family members who came to the hospital in support of Lisa, Dustin, and Hayden.

There are still possibilities that the shunt will have complications later, so please keep praying that the shunt will continue to be a success! Hayden had to be put back on a ET breathing tube, but will be off of it soon.

Looks like our litle fighter has amazed us yet again with his courage and strength.

As soon as I get new pics, I will post them.

Please Pray for Hayden!

2008-07-28T20:05:00.002-05:00

Please please pray for Baby Hayden, tomorrow he is getting one of his shunts put in to drain his cysts! PLEASE pray that the portein does well with the shunt!!! This is a difficult and dangerous surgery, so please keep him in mind!

On a great note, he passed his swallow test today, which means the formula is not going into his lungs!! Docs think that maybe he has reallllly bad acid reflux.

I will keep you updated!!!

Tomorrow will be a really busy day for Lisa, Dustin, and my Mom so if you have any questions, please call me instead of them. Thanks!!

Love,

Krys

New Pics of our Miracle Baby!!!

2008-07-25T20:03:00.004-05:00

7-24-08 at TXC

7-24-08

7-23-08

7-21-08

More Updates

2008-07-24T21:26:00.002-05:00

Hayden was taken to TXC by ambulance today, with Mommy and Grandma close behind!! They say the hospital and staff are very nice, even though parking is $11 a day!! Hayden is well worth it, though =)

There are a few surgeries Hayden will undergo in the near future. The 1st one will be placing a temporary tube in his head/brain to drain the fluids out (instead of tapping him so much). The 2nd surgery (HOPEFULLY by Tues) will be to drain/remove his cysts, and, of course, a surgery later to implant the shunt.

It may take until Tues to perform the surgery because docs need to reevaluate him...a second opinion can’t hurt! They removed EVERYTHING off of his face today; Mommy was able to see her little man without all of the tape and tubes!! They even took him off of nasal canula, stating he did not need it any more!! He is doing great so far!! Wow, what an improvement!!!!!

Please continue to pray for our miracle baby!!

Change of Plans

2008-07-24T11:00:00.001-05:00

Hey everyone! Plans have changed.

At last minute, UTMB informed Lisa & Dustin that they do not take their insurance, so Hayden can not go there. Lisa has worked her little butt off, and has got him accepted into Texas Children’s. HOPEFULLY he will be transferred today! Because of politics and such, TXC will be doing their own evaluations, MRIs, ect. This could take days.

After all evaluations and if TXC agrees to perform the surgery, Hayden will finally get the medical attention he so desperately needs and deserves. PLEASE continue to pray for our little chunky monkey, he needs all the prayers he can get!

We love you Hayden!!

P.s. Thanks so much to all that are praying for our lil man and supporting his parents, you deserve our many many thanks!!!!! Believe it or not, your positive comments and support raise their spirits, hopes, and the will to fight!

There is nothing stronger than a Mother fighting for the life of her child!

Please Pray for Hayden!!

2008-07-23T17:37:00.002-05:00

Hello everyone!

Hayden is having brain surgery (to remove/drain cysts) hopefully tomorrow. He is being transferred to UTMB tomorrow morning from Clear Lake Regional. They really wanted him to go to Texas Children’s, but they did not have an opening for another week, and Hayden needs this surgery now. Please pray for a safe roundtrip and successful surgery!!

I hope everyone is keeping up with Hayden’s progress with his site. His family really appreciates the support. Please go leave positive comments for Lisa and Dustin, they enjoy reading them!!!

We were hoping for Hayden to come in a couple of weeks, but because of this new obstacle, it may be delayed. Please keep praying for Hayden and his family, as they are very stressed and concerned, as you can imagine. He is 4 months and 2 days old!! What a big boy!

We will update his status, so stay tuned =)

**To all of my preggo friends and friends with healthy children: Please never take them for granted, or take the fact that you can carry your child for 9 whole months. At times, pregnancy and rowdy kids can become stressful, but take a moment to reflect on how lucky you really are**

Thank you!!!

Hayden Man!

2008-07-17T18:00:00.006-05:00

Daddy & Hayden

Just aswingin'

Just to let everyone know, Hayden is doing GREAT!!! Lisa & Dustin have been able to feed him a couple of bottles, and he is drinking 3 bottles every 24 hours...he sure does enjoy that over his feeding tube! Lisa and Dustin are also able to hold him every time they visit...which is every day!!!

He has his own crib and swing in the NICU!!! You should see him go, what a cutie pie!

Hayden is already ready to get up & walk, using his legs during physical thearpy!! He is really amazing all of us! It is now becoming so very clear on how much of a miracle Hayden really is. His doctors told Lisa that he had a 1% chance of survival, compared to other infants with his difficulties. What an amazing fighter!!! Goes to show how much prayer really works!

We are still waiting patiently for Hayden to come home, please keep praying for him!!!

Hayden's Grandma B (Brenda) and I made a slideshow of Hayden's journey thus far, and you can watch it at:

http://www.photodex.com/sharing/viewshow.html?fl=2999761&alb=0

Thanks so much for keeping up with his blog, your love & support keeps us going!!!

P.s. Don't forget about Lisa's shower this weekend at Kim's (at 3:00)!!! It will be a blast! Let's make sure Hayden will have what he needs when he gets home!! They are registered at Babies-R-us and Wal-mart (the one on Fairmont has more of a selection than the one on Spencer)!!!

His first REAL bath!! Mommy got to help!!

SO sleepy after my bath!!

He's back!!

2008-07-10T14:42:00.002-05:00

Hayden is back on the canula (since last night)...keep it up our lil' chicken nugget!!!

Today has been a BIG DAY for our lil Hayden Man!!! He DRANK HIS FIRST BOTTLE TODAY!! As long as he stays on the nasal canula, he will be drinking a bottle once a day (to get used to it) then more later!! He drank the entire bottle, all 25 cc’s!!!! Pretty soon, Lisa & Dustin will be able to feed him through the bottle!

We are sooo proud of you Hayden!! Keep strong, we are all praying for you!

Hayden is a BIG BOY!

2008-07-08T16:24:00.004-05:00

Good afternoon! Hope everyone had a safe and fun 4th weekend!!

Our little big man is now up to 7 lbs 12 oz and a little over 20 in. long!!! He’ll be big enough to ride roller coasters before we know it!!

Unfortunately, Hayden was too tired to stay on the nasal canula, but is still on 4 peep (nasal prongs/CPAP). Hopefully, after he rests, they will put him back on the canula next week...whenever he is ready! His little organs, muscles, and brain have had to work twice as hard with only ½ the developmental time, so they get pretty tired easily!

GUESS WHAT??? Hayden is in his OWN CRIB at the NICU!!! He is big and well enough to stay in his big-boy bed!! Lisa went out right away to get him his own mobil and other necessities; she and Dustin both are so proud of their little fighter!!

On another good note, the ROP surgery (to prevent blindness) has worked!!

Hopefully the protein levels in his brain will decrease so Drs can put Hayden’s shunt in and he will be able to COME HOME!!!! Please keep praying and visiting, the whole family appreciates it!!! Thanks to Grandma Susan for visiting today, Hayden loves to see you!

Love to everyone!!

P.s. Don’t forget about the upcoming showers!!!

Happy "Gestational" B-Day Hayden!!!

2008-07-02T00:43:00.006-05:00

Hey all you Hayden fans, sorry it’s been so long since the last post!

Hayden is now 7 POUNDS 4 OUNCES!!! Wow, almost 4 times his birth weight. Keep going big man!!

Today, July 2nd, was his official due date (he is 103 days old, or 3 months 10 days old!) but not even 1 day old gestational. He continues to amaze all who love him and pray for him! He has truly shown all of us how to be a fighter. His parents have shown us pure love and dedication while never losing hope or becoming pessimistic, even when everything seemed so unfair and wrong. They never wallow in self-pity or blame anyone for this tough situation, even though we couldn’t blame them if they do. I think we could all learn something from this courageous family.

Even though Hayden is getting so big, the battle is not over. His protein levels in his brain (which have to be below 200 before he comes home) are at 3500. They think it is due to the blood clots in his brain (from the bleeds) dispersing.

Hayden was able to stay on the nasal canula for 28 hours, but was just too tired to do it all on his own. He is currently breathing room air through nasal prongs, and will try for the canula when he is ready. Maybe then he will begin to drink from a bottle!!

Thanks to the many visitors Hayden has received lately, Auntie Sara, Grandma B & Grandpa B (Brenda & Bryan), Aunt Cleo, Tish, and everyone else. And of course, MANY MANY MANY thanks to Lisa’s parents who visit Hayden on a daily basis, sometimes even twice every day; without everyone’s support, it would be an even more difficult journey for the Vorse family.

And remember, whenever you are feeling down and out, gain strength from this little family and recognize the courage it must take them to thrive so courageously & unselfishly…God has a plan for us all and sometimes hard times are a blessing in disguise. I truly believe that God must think extremely highly of Lisa & Dustin to bless them with such a special little man. Keep thriving Hayden, you’ll be home before you know it!!

Don’t forget, Lisa’s showers are fast approaching!! If you have not received your invitation by Friday, please send me your address and we'll get one to ya!! Let’s make sure Hayden has everything he needs when he gets home =) Thanks sooo much!!!

Love to all!!!

Aunt Krys

GREAT NEWS!!!

2008-06-18T22:51:00.006-05:00

Since Friday, June 13, Hayden has been doing great!! We HOPE and PRAY he has finally caught the break in life he truly deserves!!

He is on the nasal prongs, and since Tuesday evening, breathing all on his own!!! Hopefully he will be on a nasal cannula by this weekend. If this happens, he will begin drinking from a bottle soon!!!!

The nasal cannula is a device used in the hospital, in a pre-hospital setting, or at home to deliver supplemental oxygen to a patient or person in need of extra oxygen. This device consists of a plastic tube which fits behind the ears, and a set of two prongs which are placed in the nose or nares. Oxygen flows from these prongs. The nasal cannula is connected to an oxygen tank, a portable oxygen generator, or a wall carries carry less than one litre per minute; these also have smaller prongs.
As of Friday, hayden has also been on nasal prongs CPAP, wearing clothes, and been able to be held by Mommy & Daddy!!! He is a strong 6.2 and is steadily growing!!

Friday the 13th proved to be Hayden’s luckiest day thus far!! Please keep praying for our little man!!!

Showers: We are sending out invites to both LISA’S FAMILY and DUSTIN’S FAMILY/FRIEND showers soon.
Lisa family shower: July 12, 2008 at krystal’s
Friend/Dustin Family shower: July 19, 2008 at Kim’s

ROP Surgery today

2008-06-10T13:21:00.002-05:00

Hello everyone. Unfortunately, Hayden does have stage 3 ROP (the worst kind) and had to have immediate laser surgery. It is now 1:15, and he is in surgery to correct the ROP. This surgery will correct the ROP but will cause Hayden to lose some peripheral vision, and he will be near-sighted. We are not sure of the recovery time, but hope it will be quick! I will repost when I get more info. Thanks for all of your thoughts and prayers.

On a good note, Hayden is 6 LBS 1 OZ!!!

CORRECTION: On the last posting I mentioned Lisa’s showers; here is the updated info on the invites.

July 12th: Lisa’s family shower at Krystal’s
July 19th (maybe): Dustin’s family & all friends at Kim’s

Hope everyone can make it! There are so many people to consider, and I am sorry if the dates fall on a day that someone can’t come. It is impossible to accommodate every single person =( I'm sorry!

New Info!!

2008-06-09T18:24:00.004-05:00

Thinkin about Mommy & Daddy!

After surgery!

Hello everyone, hope you all had a great weekend!

Hayden’s surgery was rescheduled to June 4th and it went great, even better than expected!!! Docs expected Hayden to have his intestines adhering together and lots of scar tissue…but he didn’t have either!!! Thanks and God bless everyone praying for our little guy!!!

Because Docs believed Hayden’s surgery to go worse than it did, they initially planned on putting in his shunt 2 months after the surgery. Because it went as well as it did, they believe he may get it in a month or so!!! If everything else goes as planned, he will be able to come home a few weeks after his shunt is placed!!

We are waiting on the debris in his brain from the Meningitis to go away!!!! They are still causing seizures, which causes apnea. As soon as Hayden can start breathing on his own, he will begin drinking from a bottle. As soon as he begins to drink the entire bottle with no residual, maintains his blood pressure/temp, and passes a few more hurdles, he will be able to finally finally finally come home!!!

He is up to 5 Lbs and 14 oz, and wearing NEWBORN DIAPERS!!! His original due date is fast approaching: July 2nd. He will be about 3 ½ months old, but 1 day gestational. He has come a long way, and so has his courageous family.

Lisa’s showers are also approaching. Her family one will be on July 12 (I am sending the invites out in 2 weeks). Dustin’s cousin Kim is throwing their friend shower, and I will post the date when it is set (it may be July 19).

Tomorrow is when we find out how severe Hayden’s ROP is and if he will require laser surgery. Please pray that his eyes are getting better!!

Love to all and kisses to Hayden!

No more bag!!!

Hayden's postponed surgery & more info

2008-06-04T00:07:00.002-05:00

As you may know, Hayden's surgery has been postponed until Wednesday at 1:30 p.m. Doctors have fund that his intestines are sticking to his stomach, which they will fix tomorrow. Please pray for Hayden's safe/successful surgery and quick recovery!!

Unfortunately, Lisa and Dustin were informed that Hayden has ROP. "Retinopathy of prematurity (ROP) is a potentially blinding eye disorder that primarily affects premature infants weighing about 2¾ pounds (1250 grams) or less that are born before 31 weeks of gestation. The smaller a baby is at birth, the more likely that baby is to develop ROP. This disorder—which usually develops in both eyes—is one of the most common causes of visual loss in childhood and can lead to lifelong vision impairment and blindness" (National Eye Institute).

He has mild ROP in his left eye, and light ROP in his right. We will know on Tuesday whether it is getting better or worse. If it is getting worse, Docs may try laser surgery. "Laser therapy "burns away" the periphery of the retina, which has no normal blood vessels. With cryotherapy, physicians use an instrument that generates freezing temperatures to briefly touch spots on the surface of the eye that overlie the periphery of the retina. Both laser treatment and cryotherapy destroy the peripheral areas of the retina, slowing or reversing the abnormal growth of blood vessels. Unfortunately, the treatments also destroy some side vision. This is done to save the most important part of our sight—the sharp, central vision we need for "straight ahead" activities such as reading, sewing, and driving" (National Eye Institute).

Because of a rapid fluid growth in Hayden's brain, he had to have another head tap this morning.

On a good note, Hayden weight 5lbs 8oz!!! he is also loved by so so many people! We want to thank you so much for keeping up with Hayden's progress and updates...we appreciate your love & support!!

Let's hope & pray that Hayden gets thr break he deserves and his ROP gets better and his surgery goes well!!!

Please keep praying for our little miracle man!!! He needs all the prayers he can get!

Hayden's Surgery

2008-06-02T22:58:00.001-05:00

Just to let everyone know, Hayden is having surgery on Tuesday at 12:30 to reconnect his intestines!! PLEASE PLEASE pray for a successful surgery and a quick and safe recovery! Thanks guys!!!

News on our BIG BOY!!!

2008-05-30T13:08:00.004-05:00

5-27-08

Hey everyone!! Guess what? Our little man is over 5 pounds!!! Wow! He is getting so much bigger and stronger!

We are hoping that Hayden will get his surgery early next week to reconnect his intestines. The sooner the better because he will have to recover in the NICU for 2 months AFTER the surgery and before they can put his shunt in. The fluid from the brain (through the shunt) will be drained into his stomach and Docs want to make sure his bowel is healed enough to handle it.

We are hoping he will be put back on nasal prongs after his surgery. The meningitis debris and seizures are the main reasons Hayden cannot breathe on his own-they give him serious Apnea. Please pray for these seizures to go away!! Once they go away, we hope he will be able to breathe on his own AND drink from a BOTTLE!!! PLUS-Lisa & Dustin will finally be able to hold him again!! These seizures have been and continue to be a major setback.

We are shooting for Hayden to come home in August!!! He will be 5 months old but 1 month gestational. He is doing well, but still having those darned seizures! Once the seizures stop, he will be taken off all of the sedatives and will hopefully be restored back to his energized little self!! We miss seeing his eyes and smiles =)

Keep praying for our little man, we all want him better!

Love,

Krystal

5-28-08

New pics

2008-05-27T13:46:00.006-05:00

5-21-08...2 month B-day!

Without tape on his face 5-24-08

Mommy & Hayden 5-24-08

5-24-08...so precious!

Prayer Works!

2008-05-25T20:00:00.000-05:00

Hello guys, hope you are having a great Memorial weekend!

I have to thank everyone for their thoughts and prayers; recently Hayden had 2 serious scares. Docs thought his Meningitis was possibly back, and he would probably have to have surgery on his heart.

Well guess what, he doesn’t have either. He has been 5 negative tests in a row (for the Meningitis)…docs believe there may just have been a small pocket of the infection in his brain that was punctured during a head tap.

The hole in his heart, that was “so big” he would “have to have immediate surgery” on, has miraculously gotten smaller. Explanation? There is only one: prayer! They don’t think he will have to have surgery now!

There are absolutely no medical explanations for these recent medical happenings and their “cures”…we are so tired of hearing “we don’t know” from the docs and nurses, so we believe prayer is the only reasonable explanation =) Thank you so much everyone for your prayers...Prayer DOES work.

MORE GOOD NEWS, Hayden weighs 4 LBS 15 OZ!!! Wow, can you believe he had gained almost 3 pounds in 2 months???

Also, when docs are POSITIVE the Meningitis is gone, surgeons will reconnect his intestines and he will no longer need his colostomy bag! Little by little he is getting closer to coming home! He is still currently having seizures, believed to be caused by the leftover meningitis debris in Hayden’s brain…hopefully they will stop when the debris goes away!

Now, pray for Hayden’s speedy recovery so Lisa and Dustin can bring him home!!!

Happy 2 Month Birthday!!!

2008-05-21T21:41:00.003-05:00

Good evening everyone, hope you all are doing wonderful!

First off, we are happy to wish Hayden a TWO MONTH BIRTHDAY!!! He is getting to be such a big boy!! We are also happy to announce that Hayden is up to 4 lbs 8 oz!!! He is growing so much every day!

Now is a time when we really need everyone’s prayers!! Doctors have found bacteria, probably Meningitis again, in his spinal fluid (that was drained from his brain). Every head tap is tested for bacteria, and his latest test came back positive. We are hoping and praying that is was just a minor skin infection of some sort, and will hopefully find out tomorrow. As many of you know, he has had a rough and long battle with Meningitis thus far. He has also been having increased seizure activity.

Also, Hayden’s heart murmur (hole) has gotten bigger. A cardiologist is checking into it tomorrow. If it is determined that the hole will continue to grow, docs will do emergency heart surgery. Hayden is also struggling with apnea spells…docs think most of his complications are due to the effects of his Meningitis.

As many of you know, Hayden has been through so much in his little time on earth, and deserves to be happy & healthy, living at home…we all know he has earned it! Instead of being held and hugged by his parents, he is stuck in a lonesome incubator at a NICU. He really really needs your prayers and support right now!! Please take a few minutes out of your day to prayer for our little fighter!!!

Thanks so much! I will try to post info up tomorrow if we find anything out!!

Love,

Aunt Krystal

Updates on the World's Most Famous Little Man!

2008-05-17T14:23:00.003-05:00

Good afternoon Hayden fans!! Our brave little (or should I say BIG) boy is doing great at Clear Lake Regional’s NICU.

Hayden is up to 4 LBS 1 OZ (double his birth weight) and 16.5 INCHES (2.5 in. longer birth length)!!! He is also receiving a little over 1 oz in formula!!! He is still on nasal prongs and CPAP…when he is able to breath completely on his own-Hayden will begin drinking from a bottle!!! It is important for him to start breathing completely on his own, so please pray for him to overcome this continuous obstacle!

He is still having seizures, and docs are treating them with increased dosages of Phenobarbital. This med is supposed to treat and cure his seizures (due to the Meningitis). Let’s hope and pray that these ugly seizures cease!

On an even greater note, Hayden has not needed a head tap in over a week!!! (He was previously receiving 3 or more a week due to the Hydrocephalus). Instead of the Hydrocephalus resulting from the brain bleeds and needing a shunt (like previously thought)---docs believe it may have been from the meningitis and there is a possibility that he will not need a shunt!!! THIS WOULD BE SOOOOOOO GREAT!!!!!!!

PLEASE PLEASE PLEASE continue praying for our little miracle man…the sooner he is better, the sooner he can come home (maybe even in JULY)!!! Lisa and Dustin have been through so much and deserve to have their little boy home with them!

Prayer does work, so please keep it up!!

Thanks and love to all!!

Krys

P.s. We are about to begin planning Lisa’s shower (possibly the 2nd SAT. in July)…if you would like to come, and I don’t have your address-please send it to me via e-mail (KDLogan1@yahoo.com) so I can send you an invite!!

Lots of new info!

2008-05-09T23:42:00.007-05:00

Hello everyone! Hope all is well and thanks for being so patient while my baby was born!!

A lot has happened since I have last blogged!!

Hayden’s ET tube was replaced with simple nasal prongs again, and he is doing great!! So great, in fact, that Dustin was able to hold him for the first time Wednesday!! What a wonderful gift!!

Also, Lisa and Dustin were able to bring clothes and put them on him!! Although the preemie clothes swallowed him, he looked as cute as ever!!!

Thursday was a big day for the Vorse family as Hayden was transported to Clear Lake Regional for an EEG of his brain!! The EEG was performed on Friday…and we are thrilled to report that he is not having seizures (like previously suspected) and brain activity was detected!!! The doctors are going to perform another EEG on Monday to make sure!

And now for the big news…HAYDEN’S MENINGITISD IS OFFICIALLY GONE!!! The final culture has returned negative!!! Thank God for the miracles he is working on our little man!!!

Also, thank all of you for your prayers, without them who knows where we’d all be!! Keep up the great work!!

P.s. Hayden has a new little cousin, Kaylee, born on May 4th…she can’t wait to meet her brave cousin!!! Can't you tell they are related???

Updates, updates, and more updates!

2008-05-03T19:02:00.003-05:00

5/1/08

Hello Hayden fans!!

As many of you know, Hayden turned 6 weeks old on 5/2 and he is getting cuter and cuter every day (keep your daughters away from him, he will be a heartbreaker =)

Hayden is up to 3 lbs 11oz!!! He started formula again last night and is doing well on it (our little baby boy was hungry =) He has a new isolet (incubator) and was started on CPAP (Continuous Positive Air Pressure) today!!! He is breathing on his own, but the ventilator will give him breaths if he needs it. If this goes well, they will try the nasal prongs again, yay!!!

The meningitis is diminishing, but we are all still praying for it to go away COMPLETELY!!!

Because I am being induced tomorrow, I may not be able to update you for a short while, but I am going to teach Lisa how to do it so she can!!

Thanks for staying updated with Hayden’s progress, the family appreciates it so much, as does Hayden!!

Love,

Krystal

5/2/08

NO ABSCESS

2008-04-30T17:15:00.003-05:00

There is NOT an abscess on Hayden's brain, which means no brain surgery...yay!! Hayden finally caught his first break! His medical team is going to try a different mix of antibiotics & new dosages to see if that will cure the Meningitis. The longer he has the Meningitis, the longer his brain will remian inflamed, he will keep having seizure activity, and will remain unable to control the amounts of pretein and sodium in his blood. We need the Meningitis gone!

Prayer definitely works so keep on praying!!

Love,

Krys

Update on Hayden

2008-04-30T16:32:00.003-05:00

Hayden’s CT Scan did not detect an abscess in Hayden’s brain, so his medical team is performing an MRI with contrast (dye) right now to double-check. We are hoping to have the results by tonight or early morning.

Again, please keep praying for Hayden and his family…Friday will be 6 weeks in the NICU, and anxiousness is starting to set in for everyone…we all just want him better and at home. Doctors think Hayden may have to remain in the NICU until August/September due to the numerous setbacks he has experienced.

Hayden’s courage, along with his parents’ strength, has been an inspiration to all of us. Please take a minute to leave them positive encouragement and comments, it raises their spirits when they read them!! Let’s keep our heads high and our hopes higher.

Love,

Krys

P.s. By the way, Hayden is up to 3 pounds!!!!

Some recent Pics

2008-04-29T18:40:00.002-05:00

4-25-08

4-26-08

March for Babies & Hayden's scan

2008-04-29T12:00:00.007-05:00

Team "WE LOVE HAYDEN" joined thousands of compassionate teams across the country Sunday that support March for Babies. They raised $380 for March for Babies that will support lifesaving research, services, education and advocacy that help babies get a healthy start, and help find out why premature birth happens and what can be done to prevent it. The March of Dimes mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality, and team "WE LOVE HAYDEN" has done their part!

We all would love to thank everyone who walked, donated, made the shirts ('til 1:00 a.m.)and had any part in this amazing journey. A special thanks to Latisha Gladden who created the team and motivated others to join and donate!!

Team "We Love Hayden" Roster:
Latisha (Hayden's 2nd cousin/team captain)
Lisa (Hayden's Mommy)
Dustin (Hayden's Daddy)
Sara (Hayden's Aunt)
Marshall (Hayden's adopted Uncle)
Magen (Hayden's 3rd Cousin)
Kathi (Hayden's Great Aunt)
Rachel (Hayden's 2nd cousin)
Curtis (hayden's 3rd cousin)
Cleo (Hayden's Great Aunt)
Lara (Hayden's Great Aunt)
Julian (Hayden's adopted 2nd cousin)
Dawson (Hayden's cousin)
Little Glen (Hayden's cousin)

If there is anyone I forgot, I am truly sorry and will correct & repost!!

Hayden is receiving a CT scan (like an MRI) this morning to determine why the meningitis is not yet gone...the antibiotics should have cured the infection by now. He may have an abscess on his brain, which is what the scan will be looking for. His scan is scheduled for early this afternoon, so please continue to pray for his safety and positive results!! He truly is a medical mystery-let’s keep praying for a medical miracle!

Love,

Aunt Krystal

Update on Hayden's Meningitis

2008-04-28T18:37:00.001-05:00

As you all may know, our little Hayden has Bacterial Meningitis. Doctors are currently performing two tests on him daily:

1) Blood & Spinal fluid (in his brain): The blood and fluid is tested to determine if the bacteria are still present; currently the tests are still positive for the bacteria.
2) Blood culture: Blood is drawn and put in a petree dish to see if the bacteria are growing (spreading). As of 4/26-4/28-nothing has grown-which is a great thing.

In other words, Hayden still has Meningitis, but it is not spreading. The antibiotics are keeping the infection in control for now. His current antibiotics are:
-Ampicillin: used to prevent the growth of certain types of bacteria
-Gentamicin: used to treat infection
-Vancomycin: kills bacteria by preventing them from reproducing

Usually, these antibiotics take 3-5 days to treat Meningitis, and he has been on them for approx. 6 days. Doctors do not know why the infection has gone away-they think it could be due to a possible absess in Hayden’s brain. To determine if there is indeed an absess, Hayden will receive an MRI in the morning. If there is an absess, he will most likely be taken to Clear Lake regional’s NICU (#1 hospital in the area for this procedure).

We are not sure what to expect, but I will keep everyone posted. Please don’t panic, just pray!!! Also, I will post the results as soon as we receive them, which may or may not be available tomorrow. Doctors are keeping hayden on his seizure medicine and Morphine to control his jerky movements and keep him comfortable…the more still be is, the less calories he burns and he needs those calories!! We are hoping he will be able to begin formula again, soon!

On a more positive note, our little man is up to 2 pounds 15 ounces!!! He has grown so much, and watching him grow is the highlight of our lives!!

Thank you so much for all of your prayers and support, prayer works.

Love,
Krystal

Mark 11:22-24
22) "Have faith in God," Jesus answered. 23) "I tell you the truth, if anyone says to this mountain, 'Go, throw yourself into the sea,' and does not doubt in his heart but believes that what he says will happen, it will be done for him. 24)Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours.

"Daddy's Boy!"

2008-04-27T22:22:00.001-05:00

Please pray for our little miracle baby!!!

2008-04-23T18:15:00.003-05:00

Unfortunately, we received some scary news from the Doctors last night. The infection “Group D Enterococcous” in Hayden’s spinal fluid (in his brain) had been diagnosed as BACTERIAL MENINGITIS. As many of you may know, this is a serious infectious bacteria. Hayden is currently receiving antibiotics to treat the infection. Hopefully, the Meningitis will be cured in a few days, but he will be on the antibiotics for 20-30 days.

He has been taken off of formula and being fed through an IV (like he was a few weeks ago). Hayden has been presented with so many set backs since he has been born, but is still fighting so hard for his little life. To date, he has experienced: severe brain bleeds, a rip in his gut (so he has a colostomy bag), Hydrocephalus, and now Bacterial Meningitis.

I know and appreciate that many of you have been praying for our little miracle baby-but he really needs them the most right now, and so do Lisa and Dustin-they have been so brave and strong throughout this! We will keep you updated with new information as we learn it.

Thanks for your love, support, and prayers.

Love to all,

Krystal

March of Dimes for Premature Babies!!

2008-04-22T14:53:00.001-05:00

Letter from our cousin Latisha Gladden, what a wonderful person!!!

Dear Family & Friends,
For the last few years, I have participated in the March of Dimes walk; I strongly believe in the March of Dimes mission to save babies. Through March for Babies, The March of Dimes is funding important research to find out why premature birth happens and what we can be done to prevent it. We never know what God’s plan for our futures will bring. Any one of us may someday need the March of Dimes for information and support.

In the past I have walked mainly because my twin cousins, Lisa and Krystal, who were born prematurely. They fought hard to stay with us, and today they are both beautiful, strong women with their own little bundles of joy. But this year the March for Babies brings special new meaning to me with the early arrival of Lisa and her husband Dustin’s baby boy, Hayden Wayne. Hayden was born this year on Good Friday, March 21 – more than three months before his due date. But Hayden is a fighter just like his mom and aunt!

This year instead of walking as an individual, I have signed up as captain of our family walk team called, "WE LOVE HAYDEN". We would love to have all the extra legs we can, so if you'd like to sign up to walk with our team, you can register (or donate) through the team site http://www.marchforbabies.org/525669.

If you are unable to join us, please support our fundraising efforts by sponsoring me in March for Babies today to help save premature and sick babies. Donating online is fast, easy and secure; you can donate directly from my personal webpage with a credit/debit card or PayPal. Or if you prefer, I can also accept cash or check. Just click the appropriate box on my personal webpage http://www.marchforbabies.org/ditta or go through the team site shown above.

Won’t you please help us in this worthy cause? With your support, there’s hope!

Love always,
Latisha/Ditta

Happy Belated Birthday Hayden!!!

2008-04-22T14:34:00.003-05:00

Hello everyone!! Just got back from visiting Hayden and thought I’d catch y’all up on some info!

First off, yesterday was Hayden’s 1 MONTH OLD BIRTDAY!!! He is still amazing everyone with his strength! He is also up to 2 lbs 12 oz and drinking 18 cc (little more than ½ ounce) of formula!! He is growing by the minute!!!

The past few days have been a little bumpy; Hayden has been very irritated and uncomfortable =( He had his first head tap (drawing spinal fluid from his brain) on Sunday and it tested positive for an infection called “Group D Enterococcous”. Nurses are trying to treat it with simple antibiotics, so please pray that they work! His temp and heart rate are still a little high, but we hope the antibiotics will lower them! Hopefully, this is nothing to be too concerned with, but will keep y’all updated…in the meantime, say a few extra prayers for him.

Keep Hayden and his family in your thoughts & prayers they still have a long journey ahead of them.

Love to all,

Krystal

Lots of new info

2008-04-19T12:07:00.002-05:00

Hello everyone!! Have lots of info for ya today.

Thursday, Hayden had to have his ET tube replaced. He had several Apnea spells (quit breathing) Wednesday night and Thursday morning.. Because he quit breathing so much, Doctors removed the nasal prongs and put him back on the ET tube. We have attributed this to his retrieval of Lisa and Dustin’s stubbornness =) They are going to wait a few days and try all over again!! This is just a tiny setback.

An ultrasound of Hayden’s head Friday concluded that Hayden does have Hydrocephalus, a condition in which there is too much spinal corn fluid in the ventricles. This occurs when the natural system for draining and absorbing extra fluid does not work right. The ventricles enlarge to accommodate the extra fluid and then press on different parts of the brain, causing a number of different symptoms. This condition was caused by Hayden’s brain bleeding. Doctors are preparing a medical plan, which may consist of transferring him to Clear Lake Regional’s NICU (who has the best neo Drs.) when he is 4 pounds.

Treatment will start with antibiotics (which will probably not work). Next, Doctors will “tap” (insert a needle) Hayden’s head twice a week to releive the pressure and fluid. Current treatment also includes surgically inserting a shunt system. This system diverts the flow of fluid from the brain ventricles to another area of the body where it can be absorbed as part of the normal circulatory process.
A shunt is a flexible but sturdy plastic tube. A shunt system consists of the shunt, a catheter, and a valve. One end of the catheter is placed within a ventricle inside the brain or in the CSF outside the spinal cord. The other end of the catheter is commonly placed within the abdominal cavity, but may also be placed at other sites in the body such as a chamber of the heart or areas around the lung where the fluid can drain and be absorbed. A valve located along the catheter maintains one-way flow and regulates the rate of fluid flow. This will most likely happen in June.

On a positive note, Hayden is up from 1.6 to 6 CC of milk/formula!!! He is growing SO MUCH and keeps packing on the ounces!! He is cute as ever (of course) and loves his Granny Grump! He held her hand for a long time Friday!!!

Thanks for keeping updated everyone!!

Isn't she a Natural?

2008-04-16T15:06:00.002-05:00

Lisa FINALLY Got to Hold Him!

2008-04-15T19:57:00.000-05:00

Dear all,

Lisa was able to hold Hayden this afternoon for the first time!!! She said it was the best experience of her life!! She was able to hold him (skin to skin) for a whole HOUR (even though she said it only felt like 2 minutes!) We are all so happy for her, and know how great it must be to hold her baby for the first time ever!!!

Unfortunately, Dustin was not able to hold Hayden because the NICU is only doing “Kangaroo Mother Care” right now because Mommy and baby were not able to experience the Motherly bond at birth (like most babies). The NICU is hoping this will also increase Lisa’s milk supply and Hayden’s sucking reflexes just by the physical contact. We will be just as excited when Dustin is able to hold him, which will hopefully be soon!!

I will keep you guys updated with Hayden’s miracle journey and upload pics of Mommy and Hayden soon!!

Love,

Krystal

A HUGE Milestone!

2008-04-15T15:11:00.003-05:00

Dear all,

Nurses were able to remove Hyaden’s ET tube (the large tube in his mouth & down his airway) and replace it with CPAP (Continuous positive airway pressure) nasal prongs last night at 12:30 a.m.!!! A nasal CPAP device consists of a large tube with tiny prongs that fit into the baby's nose, which is hooked to a machine that provides oxygenated air into the baby's air passages and lungs. The pressure from the CPAP machine helps keep Hayden’s lungs open so he can breathe. However, the machine does not provide breaths for the Hayden, so he is breathing on his own!!! This is a major major milestone for Hayden!!

Also…we are hoping Lisa and Dustin will be able to hold Hayden for the first time today!!! It all depends on his gas test, so everyone pray for a good one!! The NICU promotes Kangaroo care, which consists of placing Hayden in an upright position on Lisa or Dustin’s bare chest. Hayden’s head will be turned so that his ear is above their hearts. Most studies have proven that Kangaroo Care has a major, positive impact on babies and their parents. Can you imagine how wonderful it is going to be for them to FINALLY hold Hayden after 3 ½ weeks of seeing him through an incubator??? What a wonderful miracle on income tax day, ha ha ha.

Also, a special thanks to everyone who stays updated on Hayden and is supporting Lisa & Dustin one way or another. This is still going to be a long and stressful journey for the young parents, and they appreciate any help and support they receive!! Thanks you!

Love,

Krys

Guess what???

2008-04-14T11:20:00.004-05:00

What a horrible Aunt!!! I forgot to update y’all on some important stuff!!

First of all, Lisa and Dustin have been able to become more involved with Hayden!! They are able to touch him, take his temp, and even change his diapers!! I don’t know if it is just a coincidence, but Hayden sure seems like he has gotten better since contact with Mommy & Daddy =)

Secondly, doctors were able to attach a Colostomy bag (a removable, disposable bag that attaches to the exterior opening of a colostomy (stoma) to permit sanitary collection and disposal of bodily wastes) Saturday! Yay…moving along just great with recovery!

P.s. Hayden started sucking on a pacifier today to help with his sucking reflex!!! Hopefully he'll be drinking from a bottle in a few weeks!

Pics from tonight - Sunday

2008-04-13T22:40:00.003-05:00

Doesn't he look so comfortable on his little belly? And look at that blond hair! We just love him!

(click on the picture to see it larger and don't forget to leave your comments, prayers or just say hi! Lisa and Dustin love to read the comments.)

Sunday's Update

2008-04-13T19:35:00.001-05:00

Hello everyone!!!

Hope everyone had a wonderful and safe weekend; Hayden sure has! Saturday night (at 9:00) nurses were able to feed him breast milk (through his tummy tube), and the feedings have been successful since then (he is fed every 3 hours). He is even allowed to lie on his tummy to help better digest the milk. Of course, with any preemie starting breast milk, there is a chance of Necrotizing Enterocolitis (NEC), an intestinal infection unique to preemies (same thing Lisa had)…so let’s all pray that he avoids this speed bump!!

He now weighs 2lbs 3 oz. and will hopefully be able to use nasal respiratory help soon. I will be uploading more pics of our little guy soon!

Love to all,

Aunt krys

pics from 4/6/08

2008-04-08T17:52:00.002-05:00

You lookin' at me?

Smile for the camera!

Monday Update

2008-04-07T14:39:00.001-05:00

Hello everyone! I hope you all are having a wonderful day!

Lisa, Dustin, Grandparents, and Hayden’s doctor had a meeting to discuss Hayden’s folder Saturday evening. The meeting went well and the new parents are better informed on Hayden’s medical status.

Dr. Beady believes Hayden’s brain bleeding, or Intraventricular Hemorrhage (IVH) occurred in the womb and/or during labor. Lisa went into early labor because of a severe placental separation (Placenta Abruptio). Her amniotic sac was “bulging” outside of her cervix and her body was sent into abrupt labor. During the placenta separation, the blood flow to Hayden’s brain was shut off, so his body immediately sent a large amount of blood to his brain (to compensate for the lack of) and ruptured the vessels in his brain. It is not known yet how this could or will affect Hayden later in life, all we know is he is the cutest baby in the NICU, medically speaking =)

The doctors (and us) are hopeful that he will be able to begin breast milk and have his ET (Endotracheal tube) tube taken out next week and replaced with nasal respiratory support! This will be a trial run, of course, and if it doesn’t go as planned, there’s always the week after =)

Just remember, this is going to be a very long journey for Lisa, Dustin, and Hayden and they need and appreciate all of the prayers and support possible. Let’s all try to stay hopeful, optomistic, and realistic at the same time!! HOPRElistic, there’s my new word!

I will be adding new pics soon!!!

Love to all,

Aunt Krystal

P.S. Stay HOPRElistic

Friday update

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Hello everyone…I have uploaded pics from 3/28/08—4/4/08 so everyone can see Hayden’s progress! Hope you all are doing well!

Doctors removed Hayden’s umbilical lines (long, thin catheters inserted into the blood vessels in the umbilical cord used for drawing blood samples, administering fluids and medications) today, and will be trading them for one Picc line (Percutaneously Inserted Central Catheter) - A long, very thin catheter inserted through the skin into a vein for the long-term administration of fluids and/or medications. We are hoping he can start drinking breast milk next week.

Doctors are currently giving Hayden caffeine to stimulate the respiratory center of his brain and remind him to breath on his own (caffeine is used to treat apnea of prematurity). Although he has a ventilation tube still, his gas tests (a blood test used to determine the amounts of oxygen, carbon dioxide, and acidity in the blood) are getting better!

We did discover that Hayden has a small hole and murmur in his heart, but Doctors are hopeful that it will heal on its own!!

Hayden is 2 weeks old today and looking as handsome as ever! Please keep praying for this little guy!!!

Love Aunt Krystal

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3/30/08

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3/31/08

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4/1/08

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4/2/08

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4/3/08